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Information for Young People

About me

	What will you want to know about me?
	Will I have to give you the information?

	Why will you get in touch with me if I'm on the list?
	Can I take my name off the list later on?

What will you want to know about me?

	Your address, when and where you were born, and if you are a boy or a girl.
	We will want to ask your doctor about your CP.
	We will want to know about before and after you were born, about the times you've seen a doctor, and some things about your parents.
	Whether you are on the local special needs system. This is a list of all children with special needs where you live.

Will I have to give you the information?

We will be ask the person who cares for you to fill in some questions about you. If you can, it would be very useful if you could help with these questions.

Why will you get in touch with me if I'm on the list?

We will send you the newsletter, and the person who looks after you some questionnaires. We might also ask you to help us with other work that we're doing. It's up to you if you decide to help or not. If you don't it doesn't make any difference - you can still be on the list.

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Can I take my name off the list later on?

Yes. If you or your the person who looks after you wants your name to be taken off the list then get in touch with us at the address below and you will be taken off the list.

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Cerebral Palsy Register for Scotland
Edinburgh Napier University, Merchiston Campus
Edinburgh EH10 5DT

cprs@napier.ac.uk